Excerpt from The Huffington Post: (click for entire article)
It's a common mistake almost everbody makes, the assumption that everything is going perfectly when your friend keeps a smile on their face. Often with me people assume I'm healthy because I've managed to care for my son by bringing him to and from school, playing with him in the afternoon, attending basketball games. But these moments reflect the best of my life. I have stage 4 Hodgkin's lymphoma. I've had 2 bone marrow transplants and I've lost two-thirds of my lung capacity because of treatment. I'm doing people a disservice if I'm leading you to believe that what I do, all the medications, surgeries, and therapies, and yes, the bills, is easy and I'm not crumbling inside.
I've never written about some of my most desperate places, until now. Soon after diagnosis 4 years ago, even though I was "fully insured" with health and disability insurance, we quickly realized how little the companies would actually cover. When I began to see how it could destroy both our financial lives, I tried to legally divorce my husband. In the U.S., the sick can't afford to remain married.
Being unmarried, I would be destitute and have the option of Medicaid. My husband would keep the assets. Our life wouldn't change. We'd remove a legal label. No hospital or insurance company could ever take our home. We could survive off my husband's credit with assistance from my parents.