Excerpt from Care 2: (click for entire article)
Parents of children with disabilities and disability rights advocates are raising a huge outcry after a doctor at the Children’s Hospital of Philadelphia (CHOP) denied 2-year-old Amelia, who has Wolf-Hirschorn Syndrome, a kidney transplant. Wolf-Hirschorn Syndrome is a genetic condition occurring in 1 in 50,000 individuals; those with it have a “characteristic facial appearance, delayed growth and development, intellectual disability, and seizures.”
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« Philadelphia: Young Girl Being Denied Transplant Because Her "Retardation" Doesn't Make Her "Worthy" | Main | Families of disabled question Kansas Medicaid changes »
January 16, 2012
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