From FragileX.org: (click for full article)
When I was pregnant with my son I had many visions of our future. I envisioned watching him learn to walk and talk, hearing him say “I love you” for the first time, teaching him to read, and reading books from my childhood to him. I envisioned standing at a bus stop holding his hand on the first day of kindergarten. I envisioned sleepovers. I envisioned my husband teaching him to drive a car. I envisioned nagging him about his long hair or dirty room. I envisioned watching him graduate from high school and college. I envisioned him getting married. I envisioned him making me a grandmother.
So many visions.
What I never envisioned were armies of speech, occupational and physical therapists invading our home. I never envisioned prying my 3-year-old child’s hands from mine in order to leave him with strangers. I never envisioned days and nights of worrying about what was happening to him during all those hours he was at school because he couldn’t tell us. I never envisioned having to choose a career path for him or planning for a safe place for him to live when we could no longer care for him.
Our diagnosis of fragile X syndrome compelled us to decide on new visions. Our entry into the public school system then created a need for us to put those visions into words—something we got pretty good at with practice.