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Parents of children with autism often choose to share information about their children with their local communities. Local awareness about a child’s diagnosis can help protect the child and prevent the crisis situations that unfortunately can result from misinterpretation of the child’s actions and behavior.
Katie Schneider Ruschman is a devoted volunteer at our Walk Now for Autism Speaks in Cincinnati and the mother of two children, one of whom has autism. Recently, Katie decided to take extra precautions to display this information in her neighborhood. We recently checked in with Katie to describe her experience:
“I have a friend, Andy, who is on our city council. I sent him the following message on April 26th:
Good morning. Thank you for joining us today as we announce a landmark settlement agreement between the United States, the State of Rhode Island, and the City of Providence, vindicating the civil rights of approximately 200 individuals with intellectual or developmental disabilities (I/DD).
Today’s agreement is about opportunity. It’s about growth. And it’s about human dignity. That’s because today’s agreement centers on integrating people with disabilities into the engine of the economic mainstream: the workplace.
Work is a fundamental part of adult life for people with and without disabilities. It provides a sense of purpose, shaping who we are and how we fit into our community. Meaningful work – becoming a contributing part of society – is essential to people’s economic self-sufficiency, as well as self-esteem and well-being.Participation in the mainstream of American life was the goal of the Americans with Disabilities Act since its passage over 20 years ago. The ADA prohibits state and local governments from segregating people with disabilities just because of their disabilities.
Skilled nursing company Medicalodges faces charges of withholding overtime payA former employee of Medicalodges Inc. recently filed a lawsuit against the skilled nursing provider, alleging that the company does not properly compensate workers.
Provider advocates strike hopeful note as LTC Commission meets for the first ...With mere months to make progress on the deep issues facing the long-term care industry, the Congressional Long-Term Care Commission held its first official meeting Thursday. LTC stakeholders issued statements following the meeting focused on what the group might accomplish, declining to dwell on potential ...
National standards for patient handling aim to reduce ...Long-term care facilities should follow new standards from the American Nurses Association to eliminate manual handling of residents and associated worker injuries, the ANA said Tuesday.
“There’s no doubt it is more difficult for plaintiffs to bring retaliation claims along with their other type claims,” says M. Scott McIntyre, a labor and employment attorney with the Cincinnati office of the firm Baker Hostetler. “The burden that the Supreme Court affirmed requires ‘but for’ causation instead of a motivating factor of causation,” as in, the employment consequence would not have occurred “but for” the original civil rights claim.
In the 2009 case Gross v. FBL Financial Services, the court ruled that age discrimination cases must also meet the but-for standard, as opposed to just a substantial factor for an adverse employment action. Claims of discrimination based on race, color, religion, sex or national origin, on the other hand, only must show that the protected feature was a motivating factor, thanks to the Civil Rights Act of 1991.
Notably, the court’s decision this week is at odds with the EEOC guidelines, which state that retaliation claims are only required to meet the lower standard. “That’s significant for the court to look at EEOC guidelines and not give them deference in that fashion,” says McIntyre.
The decision about whether to disclose an invisible disability to others can weigh heavily on an individual, making social and work situations especially challenging (Clair, Beatty, & MacLean, 2005). With legislation such as the Americans with Disabilities Act (ADA; 1990) and the more recent ADA Amendments Act (2008), people who are qualified for positions and have disabilities should feel protected from unfair discrimination and free to disclose.
Moreover, people must formally disclose their disabilities to receive accommodations in school or at work. Not disclosing and requesting accommodations can be detrimental to the performance evaluations of a student or worker if the disability interferes with required tasks. Without knowing that a disability is involved, teachers, supervisors, and co-workers are left to assume that unexpected poor or inconsistent performance accurately reflects the person’s ability to do the tasks.
Research shows that the burden of concealing a disability creates strain in social and work situations that might negatively affect health and well-being (Chaudoir & Quinn, 2010). In contrast, disclosure relieves the strain of hiding the condition and increases the likelihood that the person will find and develop a social support network with others who might have similar conditions or experiences.
Update (6/27/2013): This morning, the Fort Worth Star-Telegram reported that, according to Joel Burns, who holds Sen. Davis' former Fort Worth City Council seat, Davis was equipped with a catheter during her filibuster. When contacted to confirm, Davis' office responded that the senator "made all necessary preparations."
While obsessively watching state Sen. Wendy Davis' heroic filibuster in the Texas Legislature yesterday, I couldn't help thinking the obvious: 13 hours without peeing is a long time. Was she just holding it? Or wearing some sort of, er, contraption? (The options on such things, by the way, are many.)
For the most part, the logistics on this tend to be something politicians keep mum about. "It's a kind of urological mystery," Joseph Crespino, biographer of legendary filibusterer Strom Thurmond, told the BBC last year.
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Alzheimer's Reading Room is the number one source of life news, health, and memory loss information for the entire Alzheimer's and Dementia community worldwide. The goal of the Alzheimer's Reading Room is to Educate and Empower.
+Alzheimer's Reading RoomIn a nutshell, dementia is a symptom, and AD is the cause of the symptom. When someone is told they have dementia, it means that they have significant memory problems as well as other cognitive difficulties, and that these problems are severe enough to get in the way of daily living..... Too often, patients and their family members are told by their doctors that the patient has been diagnosed with “a little bit of dementia.” They leave the doctor’s visit with a feeling of relief that at least they don’t have Alzheimer’s disease (AD). There is great confusion about the difference between “dementia” and “Alzheimer's disease.” The confusion is felt on the part of patients, family members, the media, and even healthcare providers. This article provides information to reduce the confusion by defining and describing these two common and often poorly understood terms. Subscribe to the Alzheimer's Reading RoomEmail: What is the difference between Alzheimer's disease and dementia? “Dementia” is a term that has replaced a more out-of-date word, “senility,” to refer to cognitive changes with advanced age. Dementia includes a group of symptoms, the most prominent of which is memory difficulty with additional problems in at least one other area of cognitive functioning, including language, attention, problem solving, spatial skills, judgment, planning, or organization. These cognitive problems are a noticeable change compared to the person’s cognitive functioning earlier in life and are severe enough to get in the way of normal daily living, such as social and occupational activities. A good analogy to the term dementia is “fever.” Fever refers to an elevated temperature, indicating that a person is sick. But it does not give any information about what is causing the sickness. In the same way, dementia means that there is something wrong with a person’s brain, but it does not provide any information about what is causing the memory or cognitive difficulties. Dementia is not a disease; it is the clinical presentation or symptoms of a disease. There are many possible causes of dementia. Some causes are reversible, such as certain thyroid conditions or vitamin deficiencies. If these underlying problems are identified and treated, then the dementia reverses and the person can return to normal functioning. However, most causes of dementia are not reversible. Rather, they are degenerative diseases of the brain that get worse over time. The most common cause of dementia is AD, accounting for as many as 70-80% of all cases of dementia. Approximately 5.3 million Americans currently live with AD. As people get older, the prevalence of AD increases, with approximately 50% of people age 85 and older having the disease. It is important to note, however, that although AD is extremely common in later years of life, it is not part of normal aging. For that matter, dementia is not part of normal aging. If someone has dementia (due to whatever underlying cause), it represents an important problem in need of appropriate diagnosis and treatment by a well-trained healthcare provider who specializes in degenerative diseases. In a nutshell, dementia is a symptom, and AD is the cause of the symptom. When someone is told they have dementia, it means that they have significant memory problems as well as other cognitive difficulties, and that these problems are severe enough to get in the way of daily living. Most of the time, dementia is caused by the specific brain disease, AD. However, some uncommon degenerative causes of dementia include vascular dementia (also referred to as multi-infarct dementia), frontotemporal dementia, Lewy Body disease, and chronic traumatic encephalopathy. Contrary to what some people may think, dementia is not a less severe problem, with AD being a more severe problem. There is not a continuum with dementia on one side and AD at the extreme. Rather, there can be early or mild stages of AD, which then progress to moderate and severe stages of the disease. One reason for the confusion about dementia and AD is that it is not possible to diagnose AD with 100% accuracy while someone is alive. Rather, AD can only truly be diagnosed after death, upon autopsy when the brain tissue is carefully examined by a specialized doctor referred to as a neuropathologist. During life, a patient can be diagnosed with “probable AD.” This term is used by doctors and researchers to indicate that, based on the person’s symptoms, the course of the symptoms, and the results of various tests, it is very likely that the person will show pathological features of AD when the brain tissue is examined following death. In specialty memory clinics and research programs, such as the BU ADC, the accuracy of a probable AD diagnosis can be excellent. And with the results of exciting new research, such as that being conducted at the BU ADC, the accuracy of AD diagnosis during life is getting better and better. This contribution was made by Dr. Robert Stern, Director of the BU ADC Clinical Core.Source BU ADC BulletinRelated contentTest Your Memory for Alzheimer's (5 Best Tests)How Alzheimer's Spreads Throughout the BrainCommunicating in Alzheimers WorldLearning How to Communicate with Someone Suffering From Alzheimer's DiseaseLearn what others are saying about the Alzheimer's Reading Room
State-level abortion battles are a bit like a game of whack-a-mole—even if one is defeated, another immediately pops up somewhere else. So even as feminists celebrate victory over Texas’s wide-ranging anti-abortion bill, pro-choice activists in Ohio are gearing up for their own protests against sweeping new anti-abortion legislation, hoping to capitalize on the momentum created by Wendy Davis’s epic filibuster.
“This bill that we defeated in Texas was part of a much bigger narrative,” says Planned Parenthood president Cecile Richards, who was just off a plane from Austin. “This opposition had been growing for months with the attacks on Planned Parenthood, the closing of women’s health centers, a whole series of events that just hit the tipping point and really lit a fuse in the state of Texas. This wasn’t just an isolated incident or isolated piece of legislation.”
Indeed, on Thursday morning, Ohio state legislators will have a final vote on a budget bill packed with anti-abortion amendments. Among other things, it could close down four of Ohio’s 12 clinics, impose mandatory ultrasounds on women seeking abortion, and defund Planned Parenthood. It will make it harder for women to get a medical-emergency exemption to the state’s 24-hour waiting period for abortions and will transfer money from welfare programs for poor families to anti-abortion crisis pregnancy centers. If, as expected, it passes, Republican Gov. John Kasich will have until Sunday to sign it. Meanwhile, a separate omnibus abortion bill, the Ultrasound Access Act, was recently introduced in the Ohio House, though it likely won’t move until the fall.
Gluten, the protein found in wheat, barley and rye, causes a lot of trouble for a lot of people. Nearly 2 million Americans suffer from celiac disease, a condition where the inability to properly digest gluten leads to chronic gastrointestinal symptoms such as bloating, gas and diarrhea.
On Tuesday, Dr. Richard Besser, chief health and medical correspondent for ABC News, hosted a Twitter chat on this common, yet commonly misdiagnosed disease to clear up any myths and misconceptions about celiac, gluten intolerance and gluten-free eating. Dr. Besser was joined by top experts from around the country.