Excerpt from: Not Dead Yet (click for full article)
Amanda Bagg’s name and work should be familiar to a lot of people in the disability community. A lot of people might remember reading her blog essay “If I am killed” on our old site, where it was reproduced with permission – and will be put up again in the near future. Many more will remember seeing her youtube video “In My Language.”
Amanda Baggs is an autistic woman who writes brilliantly, doesn’t use speech as her primary mode of communication and also lives with a variety of conditions, one of which has become quite serious in terms of being life-threatening. Her friend Laura T, aka “webmuskie” around the internet, wrote us that after the last of several bouts with aspiration pneumonia, Amanda had been admitted to the hospital to treat the effects of the gastroparesis that was at the root of the problem. The understanding going in was that this would involve the placement of a feeding tube, which would help her increase her food intake and lower the risk of aspiration.