Excerpt from: Love That Max (click for full post)
So it was interesting to read the results of the just-released Easter Seals Siblings Study, done in partnership with MassMutual. The
organization did an in-depth surveys of 351 adults who have a sibling
with a developmental or physical disability, and a parallel study with
adults who did not have a sibling with disability. Some of the responses
were heartening, some made me nervous. A few notable ones:
• Six in ten respondents are involved in the daily lives of their
siblings with disability (less than three in ten other siblings say the
same).
• About 80 percent say they have a close relationship with their sibling
with a disability and that the relationship enhances their life (60
percent of the general public respondents felt the same).
• Nearly half say their parents house their sibling with a disability;
14 percent say their sibling lives with them, and 23 percent say they
are already the primary caregiver—and that caring for their sibling is a
full-time job.
Easter Seals plans to use the findings to better support families caring for someone with a disability, and raise more awareness of the challenges they face.
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